THE FTD DISORDERS REGISTRY HAS LAUNCHED!
SAN FRANCISCO, March 27, 2017 - We have great news, the FTD Disorders Registry has launched!
Together we can work to end FTD. Each and every story helps move the science forward. By joining the Registry, you will become part of a vital community that is working to advance a cure. The Registry relies on persons diagnosed with FTD, their family members, caregivers, and friends. Combined, these groups create a powerful network.
The FTD Disorders Registry is both a Contact Registry and a Research Registry. When you join you’ll receive periodic news and FTD research updates by email and research participants will receive notifications to participate in surveys. The Contact Registry is open to international enrollment, but to register for the Research Registry and participate in research you must be a resident of the U.S. or Canada and 18 years of age (19 in those states and provinces where the age of majority is 19; Alberta, Saskatchewan, Newfoundland and Labrador currently excluded).
The Registry is jointly funded and managed by the Association for Frontotemporal Degeneration and The Bluefield Project, and is a key advance in our efforts to find a cure by understanding how FTD develops and progresses. We hope you will consider becoming part of the FTD Disorders Registry. Please visit the Registry website for more information.
Together, we will find a way to end these diseases.